Angry mother says people unkind to her blind toddler, assuming his white cane is a toy
Many people assume Oscar O'Sullivan-Hughes' cane is just a toy and brush past him
Be more sensitive with my son: Angry mother says people 'tut' at her blind toddler as they assume his white cane is a toy
18th February 2011
When impatient shoppers see little Oscar O'Sullivan-Hughes using his
white cane, they assume it is just a toy and tut disapprovingly at him.
But two-year-old Oscar was actually left blind at birth due to a rare genetic defect.
Now his parents have spoken out to raise awareness of child blindness.
Oscar, who lives with parents Kate Hughes and Anthony O'Sullivan in Wythenshawe, Manchester, has Lebers Congenital Amaurosis.
Ms
Huges, 30, said: 'Oscar's used the cane since he's been able to walk.
Often when we are out in the shops he will stop to smell the bread,
touch the fridges or smell the shampoos.
'People will lose
patience with him and stride right over his cane. They have never
knocked him over but they are so insensitive and will tut at him because
he is holding them up.
'Often we think it's because they are not aware or because they see that he is so young and think he can't possibly be blind.'
Ms
Hughes said the lack of information on child blindness even meant the
family struggled to access the specialised services he required.
She said: 'After he was born in November 2008, we noticed that despite his eyes being open he was not looking at things.
'When our concerns were raised, we were told he had jaundice and his sight would be okay.
'Another
person told us because he was blind he would never smile. Even when he
got the cane I couldn't bring myself to accept he was blind.
'When we went to the playgroups other parents seemed scared to look at him.
It
was only when we accessed the Henshaws service at Manchester Royal Eye
Hospital that we were able to understand and to learn to deal with his
condition.'
Oscar O'Sullivan-Hughes is pictured with his mother Kate. He has the rare inherited disease Lebers Congenital Amaurosis
Oscar is now at the forefront of a campaign to raise £50,000 for
Henshaws Society for Blind People, a charity based in Old Trafford. It
helps blind and visually-impaired people build the skills they need to
lead normal lives.
Henshaws put Oscar's family in touch with
another couple in Worcester whose son had the same condition as Oscar
but was slightly older.
Kait said: 'When we met the family they reassured us that their child was normal and could move around and talk with his brother. We knew then that Oscar was going to be okay.'
Fiona
Berry, Henshaws children and families team leader, said: 'Our children
and families service specialises in working with children and parents
with sight loss, often with complex needs and additional disabilities.
'Oscar's case is unique in that he is the youngest person by far that we've ever taught to use a white cane.'
For more information about Oscar's charity visit www.henshaws.org.uk/
Article: HERE



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